Joel,
I would like to say that I am very sorry you are not doing well.
Does Canada not allow you to have a someone that is a Medical Power of Attorney for you? I was Tim's. When he would go in the hospital, when he was not alert, sedated or could not speak, I made all the decisions for him...
Chris,
I know how hard this can be. Many of us do, but we do it or we have done it. I agree with CJ, check into hospice care and or any in home health care that you can get for your Mom. Doe's she get SS? This could help pay for the time that she would be alone. Does she own the home she...
Netty, Tim passed away on Feb. 5th in my arms, just the way he wanted it. I am still having a hard time dealing with the loss of him. I had to get Joel and Al to reset my E-Mail to lg back on here. I am taking baby steps coming back on the Forum. It is hard for me to do right now. I will be back...
As I sit and write this, My heart is breaking.....
I haven't been here in a while. Some of you may know that Tim passed away on Feb. 5th. After is long battle with ALS. He died in my arms just the way he wanted to. He was very Comfortable and Peaceful. Due to personal and family issues, I was...
Twitching/Fasiculations in ALS!
Amyotrophic lateral sclerosis
Please click and go down and READ Diagnosis!
Yes I went almost two years with Twitching/Fasiculations and Muscle Cramps! In Feb 08 my EMG started showing abnomalites! Then in June Abnormal from Neck to Feet! Atrophy in Left Foot...
Tim is not doing WELL!
Sorry I haven't been on much!
Tim is not doing well. He is loosing his Appetite, He can hardly eat now. And his voice is starting to go. I feel so helpless. Even when you do everthing you can for him and ALS! It is not enough. I feel like my heart is going to...