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    UGH! Aggravated!

    Thank you all for your responses, support, and prayers. My son passed away Friday morning September 20,2013. We laid him to rest today with a full military committal. It is never easy and I would not wish something like this on my worst enemy. It is still so surreal and difficult. Its never easy...
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    my son

    My son passed away Friday. He had been diagnosed a year and sixteen days, the day he passed.
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    frustrated and heartbroken

    Its been a while since I last posted. My son has declined quickly and refuses any nutrition through his Peg. The only thing he will let me give him is a bit of water to flush it after taking his meds through it. Family says I should just give him the nutritional supplements anyway but that isn't...
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    UGH! Aggravated!

    I haven't been on here for so long, I don't know where to start. As you all know my son has had his problems dealing with FTD like behaviors (he wasn't officially diagnosed with FTD though). Anyway, its been downhill from the first time I posted. My son is now in the bed completely, has a...
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    Anger and ALS

    @sh789- We do not use an agency or hospice. My daughter comes in to care for him and his son comes by often. My daughter sat down with him and tried to get at least some sort of explanation for his condescending attitude, I think what came out of that conversation was that we needed to listen to...
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    Anger and ALS

    Thank you all for your responses and advice. Unfortunately I don't think that a family meeting is going to help at this point. I explained that certain things had hurt my feelings and his response was less than polite and understanding, in fact, it stunned me. He said that he didn't give a f***...
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    Anger and ALS

    @ Barbie - I can certainly sympathize with you about your husband because my son is the exact same way. Their actions (from the way you described them) are spot on! This tears me apart, he is my son, my first born , dying of this disease.I know I am not the first person to have their child be...
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    Anger and ALS

    My son was diagnosed with ALS back in September of 2012. He has just recently moved in with myself and his dad. I really don't know exactly how to say this or put this so I will just be really blunt, he is hateful! He won't take his ALS medicine at all nor will he take his anti-anxiety medicine...
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