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  1. J

    Saliva ang phlegm

    8) :P i have bulbar als and i found radiation treatmnent on the saliva glands worked well for decreasing my over abundance of the stuff. i wanted to try the botox injections but was unsure as to cost/success rate. thanks to everyone for the tips there are more then a few i have not tried.
  2. J

    Bathing

    Thank you so much ladies for all your advice. I am going to call his social worker on Monday, maybe find out about the march of dimes because he and his wife would like to buy a van that can fit his power chair. But in regards to the bathroom situation, I will definitely call his OT and get it...
  3. J

    Bathing

    Thank you Carol and Patsy for your advice! Patsy...unfortunately, Dean's bathroom is not ventilated...it has a window but no fan. Other than a chair that is in the actual bath tub, there are no other assistive devices for him. He's pretty good about walking to the bathroom from his bedroom, off...
  4. J

    Small fundraising project

    Hi again! My second post tonight! Since beginning my work as a caregiver to a young ALS patient, my mind has been on overdrive researching, reading, watching movies, visiting the ALS society in Vancouver. I'm a student nurse and am surpised that in school we barely touched on the subject. The...
  5. J

    Bathing

    Hello all again! Thank you for your welcome a few weeks ago when I posted my first message! Now I am writing for some more advice. The man I care for is now on a ventilator, but comes off of it for very short periods of times to go to his computer, bathroom etc. Every 2-3 days I shower him while...
  6. J

    New Caregiver

    Patsy, this was an amazing link, thank you so much! Jill
  7. J

    New Caregiver

    Hi Melissa! Dean is not someone I knew before, I just happened to chance across this job and feel extremely lucky! We already have developed a great repoire. Thank you for your support! Tomorrow I am going to the Vancouver ALS society to see what kind of information or resources they have handy...
  8. J

    New Caregiver

    Hello all! I have recently decided to take a break from nursing school and have taken a job looking after a young man with ALS. He is married to an amazing woman and has a young son. I am his first caregiver and am amazed how easily he has accepted me into his home! He inspires me! Anyways, I...
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