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  1. H

    My latest news

    It's official. My husband is scheduled for his feeding tube and diaphragm pacer surgery. This can't really be happening. I'm so heartbroken and afraid. Ihatethisihatethisihatethis
  2. H

    A video of my husband

    This was a video of him before his diagnosis... When I first met him. The song seems so poignant now. Thought I would share. stranger I love him so much.
  3. H

    New here

    Hi, this is my first time to this site.. Though I'm not new to this disease. My husband was diagnosed in Nov2011 at 31yr old. We've been battling this for almost 2 years now. I guess I just wanted to say hi and introduce myself. I'm Kate..I'm 27... I feel like I'm losing my mind and need an...
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