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Your post made me cry. I haven't been on the site for awhile but I had to tell you thank you for sharing that. I can relate so well to your words. I'm my husbands caregiver and I've been really sick this week. He wants so badly to take care of me, too. While I was curled up on the couch, he...

Hi Mich5, That's where my husband is going, with Dr. Carlin. I hear he's really good. When/ where do you guys meet? I think going to a support group might be good. ([email protected])

From what I understand, I'm sure other threads clarify this more.. The pacer is basically I device that will send electrical impulses to my husbands diaphragm to keep it stimulated. The idea that is that it will stay stronger and not atrophy as quickly. All good things. I guess I should be...

It's official. My husband is scheduled for his feeding tube and diaphragm pacer surgery. This can't really be happening. I'm so heartbroken and afraid. Ihatethisihatethisihatethis

For a different approach.. I'd check out dr. Ledtke at the Born Preventive Health Care Clinic in Grand Rapids. It's a 3 hour drive for us but we find her helpful and caring. Might be something your interested in.

Amyezar, That's exactly how I felt about my husbands diagnosis! He was 30 at the time and the diagnosis came out of left field. He also was diagnosed at UofM. I hope you are right and this isn't what you have. Please let us know how it goes! Kate

Oops. (That can be my word. :p)

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