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  • Users: Janie H
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  1. J

    Help Please

    Since I got trached I feel like my mouth is foam ,I was prescribed patches that made me throw up,any ideas? Janie H
  2. J

    Confused

    I haven't been here in a while so many of you may not know me. My son and caregiver told me last night not to worry about saying goodbye to everyone,that when my time comes just go, he doesn't want me to linger on. What the hell is that supposed to mean? I have been fighting pneumonia and can't...
  3. J

    Eye Lock

    i am having trouble reading, my eyes get stuck on one word and won't move until I cover my eyes and start all over, I love you guys but like Dalvin I won't be here much. Janie
  4. J

    New medicine

    Has anybody takenGlycopyrrolate? I complained about excess saliva and the clinic prescribed it, side effects are constipation and slow belly, I can't afford to have these side effects since I've been in the hospital two times this year for bowel obstruction. I would like some feedback . Janie
  5. J

    Well Hell I fell too

    Fell in the shower and hit the toilet, fractured two ribs and have a pocket of air on my lung, day two back in the hospital, won't get out til the air pocket is gone.pain when I breath,cough, do pretty much anything. Janie
  6. J

    Two Year Anniversary

    Well today makes two years since diagnosis, I was still working back then and had slurred speech, got choked on thin liquids. Today I was trying to use the sweeper and reached down to pick something up out of the floor and couldn't get back up, I am now banned from housework, my right arm is...
  7. J

    Running a fever

    fever shot up to 102 last night, was 101 this morning, hard not to think the worst, very short of breath, could it be just a bug? Janie
  8. J

    In the hospital

    I am in the hospital with bowel obstruction, I don't know if I will make it out, surgery is very tricky. I just wanted to tell you all that your companionship has meant a lot, please pray for me. Janie
  9. J

    PEG Stopped up Again

    Saturday night right before the seattle Panther game I was getting my vitamins and the tube just stopped up, we taped it down to keep it from coming out and the nurse had to come out today and put another one in, I have to find liquid vitamins, especially calcium, it seems to be the one that...
  10. J

    Feeling Down After a Clinic Visit

    Maybe it's because I skipped my last clinic but this one really got me down. I saw people who were so much worse than six months ago and I couldn't eat the lunch that they provide, breathing is so much worse, I don't know why I feel the way I do, I have always been upbeat about this, it is what...
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