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  1. E

    FALS - Timing of getting a diagnosis

    I'm from a C9 family and now having undeniable symptoms of ALS. I've actually suspected the disease was starting for about 9 months but was so hoping it was in my head or explained by something else. I now know this is not the case. Needless to say I am beyond devastated and have spent much...
    • ElleT
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    • advice als brain crying diagnosis early fals family getting a diagnosis symptoms symptoms of als
    • Replies: 5
    • Forum: Familial ALS (FALS)
  2. E

    Testing for Familial ALS

    We just found out our family gene (C9orf72) so testing is now an option, but I'm not ready to do it at this point. I'm curious, if you have tested, what made you decide to do so?
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