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  • Users: BlueK58
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  1. B

    Any Caregivers who have a loved one who passed?

    Took care of my mom for 5 years. Full time for the last 2...She passed away about a month ago. I was there, I watched her go and thank god it was peaceful. Throughout it all I NEVER cried. I got choked up and teary eyed, had a few brief tears but never had a good real release type cry. Today...
  2. B

    Mom passed last night

    Hello, was posting on here a few months back but stopped. Last night my mom passed. Had such a long drawn out battle with ALS spanning over almost 5 years. Her breathing was shallow for a few days and last night she was not able to catch her breath again. We didn't see it coming this soon. She...
    • BlueK58
    • Thread
    • ache als back bed breathing cals cold father friend ice night stress wanted work
    • Replies: 15
    • Forum: Current caregivers
  3. B

    On a Positive Note!

    Posted a few times about frustration and problems and just wanted to say something nice Have a nurse and aid from hospice who come 2x a week to the house. Probably 2 of the kindest considerate people! Always have a great sense of humor and treat my mother and family with respect and courtesy...
    • BlueK58
    • Thread
    • advice als canada dad dynavox family food hospice love problems wanted work worried
    • Replies: 2
    • Forum: Current caregivers
  4. B

    Dear Ativan...

    Hello there! My mom has been living with ALS for about 4 years now. At home and on hospice. Was recommended that she try Ativan because she has EXTREME anxiety. Just figured I'd share our experience with it...Previously she was taking xanax which was working well. Nurse suggested Ativan with the...
    • BlueK58
    • Thread
    • als anxiety back confused crying dynavox fear hospice hours info meds person with als scared wanted worry
    • Replies: 7
    • Forum: Current caregivers
  5. B

    tips on organization/household maintenace

    Second Post woohoo (think i posted it in the wrong category the first time...ops:shock:) I am caring full time for my mom. Over the past 2 years things have been so crazy that yardwork/general household maintenance has piled into a mountain. A friend came over recently and cleaned up our yard...
  6. B

    advice on organization/household maintenance tips

    Second Post woohoo 8-) I am caring full time for my mom. Over the past 2 years things have been so crazy that yardwork/general household maintenance has piled into a mountain. A friend came over recently and cleaned up our yard which was so sweet and an immense relief. Almost all of the...
  7. B

    family/Caregiver frustration

    Hey this is my first post here I am 25, my mother has ALS and is on hospice but still lives at home. My brother and I quit school and our jobs and rotate caring for her 24/7 with some help from my father who works. she has a dynavox but is too tired to use it most days. We have a method of...
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