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Thank you for your kind words! I am slowly starting to realize that it is all real. I have days where I feel so exhausted, sick or irritated for no reason. Im trying to live "normal" life but I dn't remember what normal is. Your msg was so kind and selfless despite your own mourning and that...

I re-read and old message you sent me. I live in Mass and we have barely anything for ALS. We found a traveling support group that met once every couple months. When my father and I somehow managed to make it there were 2 people besides us there. I made a new friend and I found out that her...

Hi! It's been a while...Just wondering how you are doing.

Took care of my mom for 5 years. Full time for the last 2...She passed away about a month ago. I was there, I watched her go and thank god it was peaceful. Throughout it all I NEVER cried. I got choked up and teary eyed, had a few brief tears but never had a good real release type cry. Today...

Thank you so much everyone for all of your kind words! My mom was amazing. I just hope some Cals who are having a tough day read this and realize how important they are and how much they are appreciated by their Pals--even if they are not able to verbalize it or show their emotions know they...

Hey, I am so sorry to hear that. I had No idea!! I hope she is at peace and doing all the things she loved to do. I also hope you feel some sort of relief knowing she isn't struggling. I never really know what to say, I just know I can't tell you what you should be thinking or feeling about it...

Hello! It has been a really long time. Just wanted to let you know that last night my mom passed. Happy she is comfortable and peaceful. Thank you for always giving genuine support and responding to my posts. Hope all is well with you and your wife. Keep your head up like you always do and...

Hello, was posting on here a few months back but stopped. Last night my mom passed. Had such a long drawn out battle with ALS spanning over almost 5 years. Her breathing was shallow for a few days and last night she was not able to catch her breath again. We didn't see it coming this soon. She...

Posted a few times about frustration and problems and just wanted to say something nice Have a nurse and aid from hospice who come 2x a week to the house. Probably 2 of the kindest considerate people! Always have a great sense of humor and treat my mother and family with respect and courtesy...

:( I went through the same thing and still am with my mom...It's like they make up random requests just to make sure you are still up and moving. Idk if she has FTD but after reading posts with it mentioned it sounds SO MUCH like her. I need to look into it because i seriously think she has it...