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  • Users: Mageejj
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  1. M

    My Sweet Daddy is suffering no more

    Hello Everyone. My father passed away last Monday Aug 5. He was diagnosed with ALS/FTD in January of this year. And oh what a year it has been since. It has been torture watching my father losing his ability to do everything so quickly. In January he was walking and talking. Everytime we...
  2. M

    Respiratory distress

    Hello everyone, We placed my father in the nursing facility last Wednesday. He was getting weaker by the day and losing his ability to walk. He required assistance with all aspects of his life. My parents house was no where near equipped for his care. We found the best place with super...
  3. M

    Does he know who we are?

    My father with FTD has recently had something change cognitively. He has been virtually unable to communicate for weeks but it is different now. Before when I would talk to him he wouldn't really respond but I could tell he could understand me. Occasionally I would get the blank stare but...
  4. M

    Incontinence

    My father has ALS/FTD. He is currently wearing depends 24/7 for his incontinence. Every night he soaks the bed and himself. Shirt and pants included. Does anyone have any tips or advice? We have the washing machine and dryer running all day trying to keep up with the bedding and wet clothes...
  5. M

    Suddenly able to get up again!

    My father has ALS with FTD. He has been unable to get himself out of the bed or his chair without assistance for a few weeks now. Suddenly the last few days he has gotten out of bed at night and out of his recliner and walked around the house without a walker or cane. Other times he still...
  6. M

    Father ALS with FTD Caregiving dilemma

    Hello, I am new to the forum. My father was diagnosed with ALS with FTD on January 3,2013. At the time he was walking, talking, still driving, and working. Since then he has declined at an amazing rate. My mother and I have been able to handle the caregiving until this last week. He is...
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