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  1. M

    My Sweet Daddy is suffering no more

    Hello Everyone. My father passed away last Monday Aug 5. He was diagnosed with ALS/FTD in January of this year. And oh what a year it has been since. It has been torture watching my father losing his ability to do everything so quickly. In January he was walking and talking. Everytime we...
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    Driving Privileges being Taken Away

    My father has ALS/FTD. He was told not to drive after his diagnosis. He kept sneaking out to drive to get cigarettes(which he was secretly smoking). We had to hide his keys after we found out what he was doing. He was still walking at the time but mentally he was no where near he needed to be...
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    Respiratory distress

    Hello everyone, We placed my father in the nursing facility last Wednesday. He was getting weaker by the day and losing his ability to walk. He required assistance with all aspects of his life. My parents house was no where near equipped for his care. We found the best place with super...
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    Does he know who we are?

    Thinking of him as real Daddy and FTD Daddy might actually help me. We just don't really see "real Daddy" anymore. The last few days he totally seems like a different person. Yesterday he was resistant to my help and treated me as if he just didnt like me. He looked at my kids like they were...
  5. M

    Incontinence

    My thanks to Carlos and Elaine too! It's extremely helpful to hear your experiences. We bought some Abri-form diapers and tried them on him last night. He had soaked himself, the sheets and the two waterproof pads and he was still lying in a puddle a half inch deep when he woke up. I've...
  6. M

    Does he know who we are?

    My father with FTD has recently had something change cognitively. He has been virtually unable to communicate for weeks but it is different now. Before when I would talk to him he wouldn't really respond but I could tell he could understand me. Occasionally I would get the blank stare but...
  7. M

    Incontinence

    My father has ALS/FTD. He is currently wearing depends 24/7 for his incontinence. Every night he soaks the bed and himself. Shirt and pants included. Does anyone have any tips or advice? We have the washing machine and dryer running all day trying to keep up with the bedding and wet clothes...
  8. M

    Suddenly able to get up again!

    Katie C, I think you might be on to something about the FTD causing him to forget he needs to use his walker or just deciding he can do something. My mom has been giving him vitamin D again the last few days. That's the only change in meds. He has been crying much more lately. He has also...
  9. M

    Suddenly able to get up again!

    My father has ALS with FTD. He has been unable to get himself out of the bed or his chair without assistance for a few weeks now. Suddenly the last few days he has gotten out of bed at night and out of his recliner and walked around the house without a walker or cane. Other times he still...
  10. M

    Father ALS with FTD Caregiving dilemma

    We had a few more changes over the last week. He has become totally unable to get out of bed and has slipped out of his wheelchair and lift chair several times. Before we have been able to get him to crawl to the bed or couch and then we can help him up. Now he can't get the strength to get...
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