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  1. JTorm

    I'm HELL MAD AT....

    Those slow progressive PLS sufferers that appear on TV claiming they have ALS and were given the 2-5 prognosis yet you see them doing some mild excesises etc.... I have read and watch thousands of videos and medical data in regards to ALS that its strictly indicates that PALS live from 2-5...
  2. JTorm

    How to cope with some things?...

    Hi, I joined this forum in the early days of june and I'm glad i did. Despite on July 16th, being told "Suspected motor neurone disease" by a regular neuro (not an ALS specialist) my profile remains still, "i'm in the process of being diagnosed" as i have not had a definite answer yet. I'm...
    • JTorm
    • Thread
    • advice als angry coping crying diagnosed early eating family frustrated guilt love pain sad symptoms
    • Replies: 15
    • Forum: Newly diagnosed
  3. JTorm

    FDA grants Genervon for GM604 ALS Drug

    Some news from June 27, that I thought good to share. In a huge victory for ALS sufferers, FDA granted Genervon Biopharmaceuticals a fast track designation for its first in class highly effective multi-target master regulator biotechnology drug GM604 for ALS. FDA said it met the necessary...
  4. JTorm

    Als is weird! Limb and bulbar onset?

    Hello, Hope you having good day. I'm kinda confused right now... This thing is so weird to be honest... Either you start with bulbar onset and move progressively.. or you start in limbs and then progression... It's confusing because for me, 4 months ago my right leg mostly was giving me...
    • JTorm
    • Thread
    • als anxiety bulbar bulbar onset confused confusing fatigue onset pain progression swallowing swallowing issues
    • Replies: 14
    • Forum: Could this be ALS?
  5. JTorm

    My tricky case... Time would tell

    Hi, I'm Jon, 25 years old guy... Being here for a couple months and i have to thank you all for your kind words. Ms pie, Vickim, Bluek58, NightHawk and many others, thanks! Being an anxious guy all my life. No doubt about it, but this past months something is different. From time to time i...
    • JTorm
    • Thread
    • als anxiety back bed bulbar clinical denervation depression emg fear life lump mri pain problem reflex saliva tests worry
    • Replies: 3
    • Forum: Could this be ALS?
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