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  1. D

    Deb

    My sweet sister passed this morning. One year and two months after diagnosis and a rapid progression. In the end she went 13 days without food and just sips of water. We couldn't get her comfy at home, and the drugs weren't helping. We transferred her to inpatient hospice (her decision) where...
  2. D

    Sleepiness

    Hi everyone, my sister is one year into this disease and unable to move completely. Voice is gone, eats fAirly well. Some trouble with swallowing water and liquids. Having more trouble moving food around in her mouth lately, losing her tongue.. 😰. We brought hospice in back in sept...
  3. D

    Advice please, unable to use iPad anymore

    My first post. I've been lurking and reading, and have been very touched by your caring community. I've gotten a lot of great tips from you all. My very sweet sister has been an active iPad user since her ALS diagnosis in October 2012. Her hand strength is failing and her finger pointing is...
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