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I live in one of the most liberal states-Minnesota, but do you think they would pass a MM bill? Can I go to a state that has approved MM, and get it? Do any of the ALS Centers for Excellence prescribe it? I don't know if it would help me, but what I will try it, what the hell do I have to lose?

Hi Patverona, I was diagnosed at Mayo in Jan 2013, w/ ALS. I'm just starting to accept this.Like you my wife is taking this worse than me. My local ALS Association here in Minneapolis has been great, supplying me with all sorts of aids, from shower seats, walkers to both manual and power chair...

I just started week 1, so I don't know if I have the real drug or placebo. At week 0, I didn't have any side effects....although I was hoping for the euphoria side effect from Phase 1 study..ha.ha I was diagnosed Jan.2013, at Mayo. Hopefully, I am on the real thing?