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  1. J

    Ankle Foot Orthotics

    i got afo's for both feet and while they did help for awhile i had to beg them to put a hinge on right side so i could use gas petal normaly, then wanted hinge on left because i found i could not decend hills w/ one hinge and one straight now i just try to do the best i can and find it extremely...
  2. J

    work

    before i started w/symptoms or actualy while in denial of symptoms i was a mechanic and retail managment, tried to keep working as long as i could, still work a few hours a week although only as a cashier,mgr is pretty understanding and i dont think many others would give me the opportunity he...
  3. J

    Just Diagnosed

    was diagnosed in march 07 told average is 2 to 5 years, but i refuse to accept and the mind has a way of fixing things i was given foot braces for foot drop in june-kept trippingover toes and falling down-well in aug i went swimming and have not put braces back on since have not tripped once/...
  4. J

    State Looks Into Possible Middleboro ALS Cluster

    middleboro i live in new bedford and first felt symptoms in 04/05 was diagnosed in march 07,my mother passed in1990 of als, had not talked to father in 20 years so went to see him and he told me his brother[ who drove tractor trailer carrying insecticide] died of als in the 60s, dont know...
  5. J

    Stem Cells Shed Light on ALS Cure

    response to harvard study its great to know that there are some promising developments in this area, however until we can get the government to understand the neccesity of stem cell research it will go nowhere i encourage all to write their senators and congressmen/women, maybe someday we can...
  6. J

    what meds are they using for ALS?

    well i guess i will be a member for awhile till i figure a way to beat this thing, am currently considering a double blind study at mass. gen on iv antibiotics, just not sure if rilutek will be allowed,or if i want to drag an iv pole everywhere not knowing if its real or placebo, thanks for...
  7. J

    what meds are they using for ALS?

    was just iagnose last month an all i am on is rilutek 50mg twice a ay,sorry d doesnt always work, my mom passed in 90 of als an after not talking to father for years i foun out its on his side too, presently have very weak legs foot rop and some pulmonary symptoms, oes anyboy know if it can...
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