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What to say when diagnosis is confirmed?
My sister-in-law just received confirmation (second opinion) from Johns Hopkins that she has ALS. She was told that it is a more slow progressing kind, however she and our family are, nevertheless, devastated, especially since her upper nerve conduction study came back "normal," and we were...- LynnC
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- advice als back diagnosis family helpful hope mmn second opinion
- Replies: 10
- Forum: Current caregivers
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Any experience with Johns Hopkins?
Hello, My sister-in-law was recently diagnosed with ALS and is seeking a second opinion. The neurologist had an intern do the exam, was brutal in delivering the diagnosis, and gave no treatment plan whatsoever, not even mentioning research. Wondering if this is "typical" in the industry...- LynnC
- Thread
- als diagnosed diagnosis neurologist research second opinion treatment
- Replies: 10
- Forum: People with ALS (PALS)