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Oops sorry. I was posting from the perspective of an ALS sufferer launching into a venture and making a positive contribution to those in a similar situation. Having an interest outside of the disease is also healthy. It is easy to become consumed with the disease and how it affects your...

My husband Peter was diagnosed with ALS in November 2006. As his disease has progressed, he has lost the ability to use his arms and is now confined to a wheelchair. In the past we have travelled around New Zealand (our country) on holiday and have struggled to find holiday accommodation which...

The advice we have been given, is look at the rapidity of deterioration over the last three months, and you can expect to progress at that same rate. We have been advised that deterioration neither plateaus or speeds up. My husband was diagnosed 9 months ago, with symptoms for almost a year...

My husband is having lung function tests next week. He has limb onset ALS, is able to work but now using a cane. He is currently wearing a stretchy band around his upper stomach area to give him extra support because he has weakness in his intercostal muscles. My question is: at what point is...

My husband struggled with chest discomfort for about 6 months, putting symptoms down to heart difficulties (he had a heart attack 3 years earlier). An exploratory appointment with a cardiologist resulted in a referral to a neurologist due to fasciculations, and weakening left arm/hand. The...

Down under - New Zealand Happy to report an elasticised "brace" that is pulled tight around the upper abdomen area and velcroed together is working really well. My husband is able to sit upright for longer, and has had a significant improvement in pain. Yay!

A physiotherapist has today suggested that my husband's chest discomfort could be due to a weakness that has developed in his intercostal muscles. They have suggested he try a brace in the form of a tight thermal or singlet to provide him with more support. We will see how that goes.

Yes he gets more pain after he has been physically active, or up on his feet more. We have been to a cardiologist and to all intents and purposes his heart appears to be fine.

Thanks Landscape, That brace looks very interesting. I read the other link referring to chest pain. My husband finds that the pain relieves when he is lying down and becomes exascerbated when he has to sit upright for a period of time eg at a desk, driving. I am wondering whether that would...

It sounds as though your husband has progressed further than mine. My husband can still walk, although has a detectable limp. He uses a stick now, more for security. His left forearm muscle has wasted in comparison to his tight. He lacks small muscle strength in his hands. Eating is not a...