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Hi, I am depressed. Anxiety. Hopelessness...

Not really because the end life care in Japan is kinda tough for PALS. I saw that with my dad. But you are right family support is good. I can't make any decisions like that now because my life is still here......

Not that good..... I don't know how to go on.

It breaks my heart that my mom and sister will have to go through another family member go through this....I wonder now my neck and shoulder stiffness is part of ALS, too. I always had weak neck and chronic shoulder pain, especially being an ultrasound tech. Now everything is ALS. I don't have...

Hi Jodi, thank you for writing. I am going to UCI coming Friday. I am 39 and divorced living alone here. My family is in Japan. I cannot imagine how hard it must be for you with children.... Right now I have no hope. I want to find it. Kyoko

I was seen at UCSD ALS Clinic and will go to see UCI ALS Clinic next Friday. UCI is physically closure. Do I ask them about clinical trials or is this something I need to pursue? Nikki, How is your sister going through all this... I am mentally defeated right now.....

No that was recommended not for the clinical trial but just to document for the family since I have a sister and a nephew and future more. Does the ALS clinic be able to help me with that? I imagine my primary doctor has no clue.... When they tested for my dad after he died, they said it was the...

I am in a lot of pain.... Wish this can be better controlled.

He gave me a confirmed diagnosis. I don't know what I am supposed to do next.

Seeing the ALS specialist in UCSD tomorrow. I can't seem to stop being in fear.