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    Me too

    Welcome Mark, I too have a biker background. Biker buddies are some of the best in the world. Give me a shout if you ever need just to vent brother ,us bikers need to stick together. Everyday is a good day , some are just better then others...
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    Benign Focal Amyotrophy

    Hi Ruby, That is what I was told I probably had at the start. Then it was Multifocal Motor Neuropathy. They had me try an IVIG treatment, it didn't help. It was then they diagnosed me with ALS. The way I understand Benign Focal Amyotrophy it is mainly the muscle spasims. someone else may know...
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    Walk to defeat als

    Indianapolis's Walk is on the 28th of this month. This is my first year with a team " Johnny's Walkers " . everyone who is participating in a walk this year , I hope you have a great time . And to the ones who have already participated THANK YOU God Bless, John
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    Welcome , you will enjoy the members here . There is a lot of knowledge floating around . I...

    Welcome , you will enjoy the members here . There is a lot of knowledge floating around . I have learned a lot just since I have joined . John
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    Fasciculations

    Fasiculations were the first thing I noticed last march . Strength loss came later . the more tired I am the worse my fasiculations got , but they are there 24/7 all over my body . According to my Doctor , there is not much they can do for them. I understand they lessen the further you...
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    arm heaviness

    Thank you Elaine , Mostly I just don't have much energy to do much. Tho I do try. Today was a bad day for heavy arms, worse they have been so far . Tomorrow may be better we will see . God Bless.
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    Hi

    Hi , Just wanted to introduce myself , I'm John and have had ALS for about a year. I am progressing slowly right now as I am still walking and driving . It is really great to have some place to go where so many understand . Thanks again for being here . God bless everyone of you. John
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    arm heaviness

    Hi , my first time to post . I have the same problems with my arms , but my biggest problem I notice is fatigue. It is overwhelming at times . I try to make myself stay busy within reason. I to notice more weakness the more tired I am . My thoughts and prayers are with everyone...
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