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  • Users: mariasb
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  1. M

    He's gone

    My husband had been stable with hospice care at home but I noticed changes in him the weekend of Sept. 7th. By Sunday night I realized that he was probably dying and the hospice nurse came out Monday. She said yes he was worse than he had been but did not think it was his time yet. By Tuesday...
  2. M

    Hard decision

    My husband has been in and out of the hospital the past few weeks because of anxiety/mental issues. He had been on some anxiety meds but was still yelling a lot of nonsense mainly at night when we were trying to sleep. Our clinic advised us to take him to the ER to be evaluated. They...
  3. M

    Totally different person

    My husband has ALS and I am his caregiver. This is very sad because I feel that I have already mourned the loss of my husband even though he is still living. He is not at all the same person that he was before ALS. We truly believe that he must have some brain involvement and dementia but...
  4. M

    Just trying to vent

    My husband is 52 and was diagnosed with ALS 11/12, however, he had physical symptoms since 1/12. He is becoming more and more compulsive and also very child-like sometimes. The tantrums are ridiculous as he screams in this high pitch tone that I have never heard out of him until recently. I...
  5. M

    Just one positive thing one day at a time

    Hi all. I have always been a huge planner....planning for this problem, or in case that happens and planning for the future. My husband of 24 years who is 52 years old was diagnosed with ALS in November 2012. As you are all well aware, there is NO planning for that news. As a previous person...
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