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Nikki, How do I get in touch with you.

I don't know, but I'm hope this will help with some questions. Last year I got to 5 years after diagnosis and my nero told me the chances of me going into ALS were very slim. He also told me to contact him right away if I had and concerns at all.

Prayers to you Debbie. I can tell you that my nero said that at 5 1/2 years since diagnoses he would be really surprised if I advanced into ALS. I just count my blessings and refuse to let my husband "do" things for me. I can't stand long enough to cook or shower, and can't walk very far at all...

Your in my prayers Mike. So sorry for your new diagnoses.

Upper Sandusky, Ohio. We are planning a trip to Gatlinburg in July. Love it down there.

I'm beginning to think my doctor is very special. He is always with me at least 15 minutes, not only does the neuro exam, but asks how things are going, and wants to know if I have any questions or concerns. I see no one else, just the receptionist who takes me back to the room and schedules my...

Anne, I was diagnosed almost 5 years ago and I get upset every couple of months. I get short of breath so can't walk longer distances and use a wheelchair in that case. I also get upset because I am not allowed to drive anymore and can't go see my grandbabies as much as I would like. But then I...

Wendy, When I got my diagnoses from my nero, he sent to Ohio State University to see Dr. John Kissell, and he confirmed my diagnoses. He was very nice.

Our weather here in central Ohio has been terrible. I have taken to staying inside most of the time. We have a remote starter on our car, that helps a lot when my husband remembers to start the car.

My nero knew there was something wrong from the first. He came to the PLS diagnoses by doing tests to rule other things out. It only took him a couple of months to come up with the diagnoses. I was really lucky to have it found so fast.