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Isn't ALS an absolute monster? It affects not only the PALS, but sweeps everyone up into it's vortex. It's path of destruction is both wide and deep. You are to be applauded! This has been going on for 4 years! On top of that, the loss of your brother, has added to your depth of sadness and...

My partner, Michel, had clean tests on everything! His EMG turned up negative. In fact, we were told he might have auto-immune disease rather than ALS. His neurologist said there is a group of up to 25% people who can get a negative reading. However, he did have ALS. Most of the signs were...

My sincere condolences. It is such a an abrupt halt in so many ways. This monster, or my "Public Enemy Number 1", as I refer to it, not only takes away your loved one, but leaves you wiped out as well. It certainly pulls no punches. I will not say time heals, or it is for the best. It simply is...

When I was caring for my partner, Michel, we stuck to a routine. We found that if we stayed home, he would tend to go back to bed and sleep off and on. However, if we went out, he could keep going for hours. Hence, we went out nearly everyday. He just needed to be doing something. Boredom really...

Of course, as you probably have been told, every case is unique. This is a low intake, but it is amazing how the body can sustain itself. What was her weight and how much has she lost over time? I was making a lots of vegetable soups, which I would feed to my PALS. He could still swallow cereals...

You need to really assess your position quite carefully. First, what kind of care/support does he currently have? When you visit, what support do you offer him and how would you define the quality of your time together? Is your sister supporting you too or are you the stronger one? What about...

Hi! Like any disease, it is possible to have other ailments running alongside MND. MND does not have a monopoly on one's health. My partner, Michel, had some arthritis and spondylitis. He did take brufen, which was helping his early symptoms of MND. His lumbar puncture did point out some...

Dear Dianan, the ALS monster is vicious, isn't it? Three years is a long time and takes it toll. Just when your loved one is at the worst, as a CALS, you are at your weakest. We all know that ALS doesn't just affect the PALS, but aims straight for the care giver as well. It is interesting...

Hi! It does seem strange that there are improvements, but one thing we discovered through some research is that in the early stages, that the body will try to find ways around damaged areas. My partner, Michel, started taking brufen early on, and not for pain, which all the doctors thought he...

I was in exactly the same position. I am a teacher and took leave from last October until February 2014 (Australian school year starts in Feb). It was always our concern when I go back to work about what to do. However, if it had come to that point I would seek extended leave, which they give us...