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Hi All. I am so sorry I have not been visiting, touching base and offering support. I have been putting one foot in front of the other. After feeling slightly more positive at the 7 month point after losing Iven, I took a nose dive and have been struggling to keep my head above water (gee what's...

Hi everyone. I am reaching out because I am feeling so down and wonder whether this is normal. It has been five and a half months since Iven's passing and I still feel so empty and lost. Life goes on and I am busy looking after my girls, the dogs, the house, staying on top of my studies, and I...

Our darling Iven passed away on Saturday evening. Following a traumatic week of ICU and hospitals trying to treat his pneumonia and having a peg tube fitted so that he could receive liquid and meds, he returned to Hospice on Saturday afternoon. Shortly after his arrival he had difficulty...

Hi everyone. Please keep my darling PALS, Iven in your thoughts and prayers. He was admitted into ICU yesterday afternoon with severe pneumonia. He has been in great distress for the past week and eventually could not take it anymore despite the morphine taking the edge off. I am not allowed...

This may seem like a strange post, but I just felt I wanted to share this with you all. So often when we are sharing, it is about the tough moments. Yesterday I had a moment that was so wonderful I wanted to freeze it in time. Just the other day I posted on one of Scaredwife's threads about...

Hi everyone. I have exams coming up and will need to be away from the home from very early in the morning until afternoon. In a few months time I will also have to start working three full days a week and attending meetings on the fourth day. As a result I spoke to my husband this morning...

Hi everyone. It has been worrying me lately that I actually have no idea of what will happen when my PALS passes on. I have purposely avoided any thoughts in that direction but got such a shock when Cheryl's PALS passed so suddenly as he was diagnosed after my husband and was still more...

Hi everyone, I didn't want to hi-jack anyone else's post so decided to start a new one. I just need someone to talk to about this who understands, so thanks for being there all of you :) As I have mentioned in other posts I am my husband's only caregiver. He refuses to allow anyone else do...

Hi everyone. I have read all the threads on FTD with ALS and also the recommended articles. I strongly suspect that my husband has FTD as well, but do not want to subject him to all the tests that are required to confirm diagnosis. I wondered if those of you who have experience with this could...

Hi everyone. I could not find a thread on this topic and would really appreciate feedback. I do everything for my husband as he has lost his speech and use of his hands and arms. He is still walking, although with difficulty. It is worrying me that he is on his own when I go out. I try to...