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  1. E

    snail mail to your Congress people.

    Please consider sending your version of this snail mail to your Congress people. This is ALS month. We all need to become more like the HIV activists. if possible use personal stationary, tell us if you decide to participate. Please spread the word on your social media.
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    Updated list of known patients who reported significant improvements after propofol

    Updated list of known patients who reported significant improvements after propofol anesthesia. Patient: Cypress Improvements: increased dexterity, better speech and swallowing Dose: 1100 mg When noticed: same day Duration: noticeable regress after day 9 Patient: Jason Improvements: normal pft...
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    Ask us about this: Propofol

    Re posting: "Specific Improvements For Me: Improvement in right sided swallowing. Can eat and drink currently without coughing every single time I do either (which was the case before my biopsy). Also, a feeling of more right sided strength which is more subtle than my swallowing improvement...
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    propofol as a therapeutic

    "There is a topic heating up on the potential of propofol as a therapeutic for ALS. Since this is not something that can be a DIY (Do it yourself) trial, I would like to ask anyone who is going to have a surgical procedure done and propofol is used as the anethsetic (i.e. feeding tube...
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    Kenopaullone

    Kenopaullone? Anyone familiar with this: Stem Cell Screen Points to ALS Disease Target It sounds very interesting.
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    There are available treatments!

    Thank you Dale For the terrific selection of treat us now! Posters! Here is a link to one sample. https://docs.google.com/file/d/0BwVQbhe0302IaUFtaDd6Nk1VRjA/edit?usp=sharin g Suggest everyone ask for the entire set so that they can Influence more people During their ALS Spring walks and...
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    15 minutes available during the May 10 ALS

    If you have 15 minutes available during the May 10 ALS Association meeting we would love to hear from you.
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    > ALSUntangled has already finished the Deanna Protocol analysis:

    > ALSUntangled has already finished the Deanna Protocol analysis: > > ALS Untangled No. 20: The Deanna Protocol > > My PAL is currently on it, only having some of the main supplements, with no noticeable benefits so far. Anyway we will keep on it till we finish the supplements we bought. > >...
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    PALS DIY Cooperative

    PALS DIY Cooperative checking to see if there is any interest in forming a PALS DIY Cooperative? -we would collectively nominate a total of 20 therapies, off label drugs, supplements, vitamins. -hire a PhD contractor -members would receive a phone call or submit an email update every two...
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    "They responded before they had to and provided us with a very aggressive trial"

    "They responded before they had to and provided us with a very aggressive trial" Richard Garr, J.D., Director, CEO and President of Neuralstem, expressed particular thanks to the ALS community for their passionate participation in the February 2013 FDA hearing. "The outpouring of support...
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