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Hi guys, hope you are having a good day. here is my journey so far, to give you some insight, I really appreciate you taking your time to read this. 8- 10 years of progressive symptoms. I have had so much tests and seen so many neurologists and neuromuscular specialists and still no answers...

Hi Laurie, Thank you so much for your reply, it really helped me. Since we spoke the last 2 days i have cramps pretty much non stop in my throat, tongue and soft palate.. Coupled with the new sleep stuff im definately worried.. Do you think this is of concern when it comes to als? I can...

y*Tb12*on September 29th, 2018, 3:07 am Hi guys, I have 7 years of symptoms, had so much tests and seen so many neurologists and neuromuscular specialists, emgs were clean and they didnt suspect anything. Symptoms: Fasciculations Cramps Tremors under muscle stress Nerve pain Fatigue Joint...

hi there Firstly thank you to anyone who takes the time out to read my message. hope all is well! just looking for some information and or reassurance i guess.. i have been suffering with symptoms that mimic in one way or another BFS, CFS, Kennedys disease, possible MND for 5 years now and...

Does the fact the neurologist tested my cheeks mean that I can also not worry about possible UMN bulbar issues?

Thank you Janelle, It made me feel a lot of comfort. I recently found out a friend of mines dad passed from ALS, I'm going to do the walk for MND fundraiser next time around, anything I can do to help for a chance at ending this condition, it's the least I can.

Hey guys, I just want to say a huge thank you to all of you who has Messaged me over years on this board Today I saw a neuro muscular specialist, who also spend time in a USA Mayo clinic and he did a emg test of my Lowe legs, right arm and right cheek looking for bulbar signs and everything...

I went to the gym today to attempt to do weights and my chest and arms were tremoring just trying to hold 20-40kg's :( Today my ribs and chest are in so much pain, my arms didn't give out or drop the weight but my back, shoulders,chest, arms were just tremoring like crazy... Really worried.

Thanks for your reply Laurie, means a lot I'll keep looking into other avenues.

Hi Laurie.. Thanks for the quick reply, it means a lot and I will take your advice and look to seek other support and help:) Just a quick question, why did you suggest H. Pylori? I actually was tested for that only a few months ago as I have a array of stomach issues but it came back normal...