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    Husband with ALS

    Thank you. According to his doc, she "suspects" he will be in the class of patients she's been seeing for 15 years and not the ones that she doesn't see for the next appointment. I'm going with that response. It works for me. Though, maybe before 15 years are up, they'll find the miracle.
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    Husband with ALS

    The doc has prescribed a brace for his leg and he refuses to get it. He thinks that if he wears one, people will notice that there is something wrong. ;-) Seriously, his denial is better than the river.
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    Thank you so much for your kind message.

    Thank you so much for your kind message.
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    Thank you so much! I will seek out the page on FB. I've found a few resources since yesterday...

    Thank you so much! I will seek out the page on FB. I've found a few resources since yesterday when I decided if I didn't find an outlet for my emotions I was going to be of no use to anyone ... Or I was going to explode! I'm sure you have no idea what I'm talking about.... (Read the sarcasm there!)
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    Husband with ALS

    Thank you all for your kind words and welcome. I must admit I teared up as I read them and am tearing up now as I write this note. Unfortunately, we don't appear to have any groups in our immediate area. We're in a fairly small northern CA town. I know my husband has had several conversations...
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    Husband with ALS

    So here goes my first post. I have been feeling a tremendous amount of anxiety about making my husband's illness about me. But I find that at some point, I need to find somewhere where I can talk about it - an outlet for my emotions - which include all the stages: sadness, anger, fear, denial...
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