Search results for query: *

Hi all, my sister posted last week about the passing of our daddy. I wanted to add a few things to what she had posted and also use this forum as an outlet to vent some of my feelings at this point in the hope of possibly helping someone else in a similar situation to at least feel like they are...

Hi Katie, You seem to have such a good handle on all this I was hoping I could ask you for some advice. My mom works 3 days a week and my sister and I are caring for my dad on the other days.My mom is just about to lose it.He seems to respond better to the care from me and my sister but we...

Thanks for the advice, Katie C, a nurse was out yesterday and said the coughing and drainage was probably just sinuses. Right now we do not have him elevated to sleep. That's a good point. Maybe that's where we need to go with the restlessness. We plan to watch him again tonight and see if...

Update: he is up and awake now, but moving very slowly today. Maybe he was just really exhausted. He is still acting as if he doesn't feel well (I know, duh, he has ALS, of course he doesn't feel well!) but I mean beyond the norm. I guess we will just watch and see what comes of the day.

Hi all, Mageejj's sister here. I am at home with my mom and dad right now and we put him in bed last night around 10:00pm and it is now 10:30am and we can't get him to get up. He looks at us when we go into his room and seems to listen when we talk but then he turns back away from us and pulls...

Hi all. My sister and I are both members of the ALS forums and are helping currently with caregiving for our father who has ALS/FTD. He was diagnosed in January 2013 and has declined to the point of not being able to get in or out of bed, shower, or go to the bathroom without assistance. He...

Hi there. I hope you are doing ok. I haven't been on here in a while but was glad to see that you had responded to my earlier message. My dad has been declining very rapidly and we are scrambling trying to figure everything out and still provide him the care he needs. We are currently thinking...

How crazy is this! I'm Mageejj's sister, lol. I am actually at the house right now helping our dad today. I concur with everything my sister has said. One thing I would add that I would be interested to see if anyone else has any input or advice about is that it has become nearly impossible to...

Hi Okie 2, I just registered to the forum and live in Oklahoma. My dad was diagnosed in January and I have been exploring the resources available ever since. I live in Tahlequah and he and my mom live in Catoosa. He hasn't lost mobility just yet, but has very little motor skills left and also...