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My religious father wanted Mom home. I told him a year ago if she is at home, the house will start to resemble a hospital. Today, a man delivered oxygen for Mom, she is getting a AVAPS machine soon too. Dad looked at me and said "I hope you know what you are doing". He refuses to go to the Dr...

Its been a long time since been here. Guess you can say I have been preoccupied. Last January in 2013 my mother asked I help her - Mom has ALS. She said my father (who never cooked or cleaned before) could not help much, and he is in his 80's. So, with my husbands blessing, I traveled from...

Been here for a full 3 months. Thought there would be more quiet time to spend with Mom. I find myself being the sibling dealing with Dr. and Medicare appointment/visits. Calling about resources, shopping, cleaning, cooking, bathing Mom, dealing with the ALS association - which have been so good...

Today is a good day. Got mom into the bath and to our delight, everything went ok. Our ALS care service coordinator, Caryn, brought us a new swivel seat and some other "goodies". Caryn is simply wonderful. It is hopeful now that my parents will welcome another helper to enter the home. Well back...

When my mother told me over the phone that tests proved she has ALS, I don't even know if I could say I started crying after I hung up. It was more of a wailing, weeping and screaming. I visit Seattle from the East coast of Canada a couple times yearly. Now I find myself in my childhood home...