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One day at a time is correct. The community on this forum had been nothing short of extraordinary comfort. I return to Toronto this Saturday, to settle a divorce (not my idea - husband cheated, with another now). I am actually thinking of relocating, buying a home here in Seattle in order to...

My religious father wanted Mom home. I told him a year ago if she is at home, the house will start to resemble a hospital. Today, a man delivered oxygen for Mom, she is getting a AVAPS machine soon too. Dad looked at me and said "I hope you know what you are doing". He refuses to go to the Dr...

This is so so difficult. I just spent the last hour crying. My Mom has ALS. Seems like since I came here to help, family members have slowed right down to help. She needs to be turned more often: At least they can do that when they visit. Support is so important. I am asking for more help from...

Some great wisdom has been offered. "No victims": I must take that to heart. Some of my friends have nothing to do with me anymore, the very few ones left are wonderful, yes I am blessed. Thank you Milan, you are family.

Hi! My mom has ALS. I know how hard this is. Well meaning people ask "how is your mom doing?" and say "I hope your mom is better". They do not know. My only comfort is mom is starting to accept this fate and is not angry and screaming and lashing out all the time anymore. She can still talk and...

Thanks for writing to me: Barbie, Paulette, and Kim I am better and taking antidepressants. For the first month I was a wreck, cried for hours, did not eat. It still hurts, so does watching my mother suffer with ALS. Sometimes I do not know which emotion is surfacing. I have my 2 brothers here...

Its been a long time since been here. Guess you can say I have been preoccupied. Last January in 2013 my mother asked I help her - Mom has ALS. She said my father (who never cooked or cleaned before) could not help much, and he is in his 80's. So, with my husbands blessing, I traveled from...

Been here for a full 3 months. Thought there would be more quiet time to spend with Mom. I find myself being the sibling dealing with Dr. and Medicare appointment/visits. Calling about resources, shopping, cleaning, cooking, bathing Mom, dealing with the ALS association - which have been so good...

Dear Judy, Thank you for writing back. How did you administer the morphine to your mom please? Mom will not get a feeding tube.

Hi Judy Please let me know if your mom suffered without a ventilator. My Mom does not want a feeding tube, nor a ventilator. She is quickly "declining", loosing more weight. Hoping for the best. Praying for it.