Search results for query: *

Sorry to ask, MND qld came out and want me to get eye gaze now (it's free via them) so I can learn in time due to my speech & difficulties now using the iPad. I'm stuck in indecision city ! I prefer my iPad . I have searched threads and apple about the switches, but they were too technical or...

My last thread closed so just a quick recap ( from 6 weeks ago) I added daytime issues I don't breathe well enough on my back when I wake up so I have to roll on my side where it's much easier (but uncomfortable) My last FVC was 33% August 2015 (local dr is chasing the new test up this week...

Hello everyone I'd love some advice from pals and cals out there who have opted to get a standard electrical bed instead of a hospital bed I thought I'd better ask before forking out good money for it I'd prefer to stick to a double bed as I can't roll otherwise, I want to keep things as anti...

Do most people ever fully overcome the frustration and irritability? Mums been caring for me since I was 29, admittedly the first 2 years I was really bad and the last year I've been 80% better but there's still times I can't keep it together and poor mum bears the brunt of it. I do tell her I...

Hello 😀 I was wondering what symptoms people experienced when they first started having breathing problems overnight ? My last lung function was 33% but my co2 was fine that was 7 months ago Lately I've been sleeping 10-12 hours and I'm still tired. I don't get headaches I can just get a fuzzy...

Very recently My lung function Dropped from 75 to 45 over three months , I had Another test 4 weeks later and is still around 45. So the doctors asked me whether I want a peg or niv. To be honest I really do not want a peg. My reasons are I suffer from anxiety and got panicked having a alarm On...