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I watched the ABCs of ALS very informative. This should be a must see for anyone diagnosed or taking careof someone with a motor neuron disease. It offered some very good insight into the disease. Thanks for suggesting the video. I came across a quote the other day from Helen Keller I'd like to...

Elaine, thanks I will check it out tonight.

Deb and Bob thanks again for commenting. Would either one of you care to comment on your situation at the present time. If you don't I totally understand. Like i said I'm new to this so sharing anything you can is very valuable to me. By the way my first name is Beth. Thank you

So sorry to hear about your sister. You will be in our prayers. Actually my husband had a recent chest cold and had a severe allergic reaction because of the rilutek and tyenol that i had given him. We didnt realize not a good combination. Currently he has stopped taking the rilutek until the...

Thanks Deb for the info. Its really hard for me to ask questions to the doctor while he's with me he doesn't like me asking questions. But his actually started almost two years ago with the foot drop. He is totally incapacitated now. Loss of limbs loss of hands but he does not yet present any...

hello everyone! Just a quick question. Do all ALS pts wind up on having feeding tubes and have vents. I posted before that my husband has been diagnosed recently and I'd like to know what the future hold for us. I read about this all the time so I'm assuming that eventually it will happen but...

Thanks for commenting. We currently go to the VA hospital for his appts. No I really have no support. I'd like to find a support group we live in a small community and there is not a much here unfortunately. He has bee in denial for a long time as well. That does not help me cope any better. He...

Hi everyone. i'm new to this so bear with me. My husband was diagnosed with ALS december 2012. He actually started having symptoms a year and half ago. He is in motorized wheelchair. I do everything thing for him. Feed, bathe, dress,medicate. He is just beggining to have some swallowing...