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Hi, i am wondering if changing a pwc flat tire is something that should only be done by a technician. Has your cals or friends ever changed one? Or is this a big no-no?

I am working hard to put some weight back on my bones (although I now have a perfect skeleton Halloween costume). So far, my tummy feels comfortable with 200-300mL so I am tube feeding 5 times a day. Out of those 5 times, I am using commercial formula (resource 2.0) twice. Everytime. I ingest...

It is with regret that I share with you the passing of our PALS Syekick on Aug. 11/13. My deepest condolences to his loving wife and family.

Getting my fingernails cut and can't stand having them filed. Feels and sounds like fingersnails scratching a blackboard. But worst of all is having somebody else clean my belly button!

Not sure who is better at catching mosquitos: Me with me gimpy hands or my soon-to-be 2 yr old?

Now and again, I get a tickling sensation in my throat when I talk too much. I can usually get rid of the itch by drinking cold water or by doing "a-hum".* Recently, if I can't control the tickle, it feels like my throat muscles contract for just a couple of seconds and I can't seem to get any...

I don't understand why someone would tell me that illness in the body is a reaction to emotional or psychological trauma... It implies that I am responsible for my ALS? Really? Does not make sense at all. What a load of crap, I say!*

Hi Just have a few questions about feeding tubes. I think i have read most of the past posts re the peg. I also watched the very informative video from the als association regarding swallowing and feeding tubes.* I was just wondering if anyone ever regretted getting a peg? (weird question i...

Hi everybody I just joined the forum a couple of days ago. I have been diagnosed with ALS almost 2 yrs ago. I use a pwc to zoom around and always bug the techs to increase its horsepwr or to get it to shift speeds (like a motorbike) without having to stop before each time. I am 41 and have 3...