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Thank you, it has been really hard, thinking it was just a pinched nerve or arthritis to not being able to move in a matter of months has been awful. She is only 47 and has 4 children, the youngest is 15. We have two other family members who had ALS, my uncle passed away last year but he had it...

My sister was diagnosed in Oct 2012, went on rilutek right away. Her progression has been lightning fast, she is now in her final stages. Someone said maybe rilutek sped it up. Has anyone else had that experience? If so and the rilutek was stopped, did it slow down the progression?