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Essential information for the newly diagnosed! This is my magnum opus. This, along with my other documents and efforts to support the ALS community, is how I justify my continued existence and attempt to make amends for a lifetime of hubris. I have just begun my 7th year post diagnosis and I...

http://www.teamgleason.org/wp-content/uploads/2019/01/Team-Gleason_wheelchair_web.pdf

A couple years back, my first ever 911 call went poorly: they had no protocol for pALS. That 'incentivized' me to get 911 aware, so I contacted my local 911 authority and began a discussion. The attached is the first-pass result of my two years of encouragement. Please read it. Please comment.

I worked with Team Gleason on testing their Home Automation offering: Home Automation | Team Gleason | Steve Gleason | New Orleans Saints And was asked to document my experience in a blog post. But there's a wait while the new website is built, so I thought it both useful and worthwhile to...

Not porn, sry! ;-) I searched the Forum and found no definitive answer to this: How do you manage your computer whilst in bed and sleeping? On Every90Minutes, they mention a wall mount setup that's 1) No longer available, and 2) Requires tweaks. I do have a rolling ConnectIT mount that...

My nose is pretty much always stuffy. Whether from allergies or winter, I don't know. I thought of essential oils and got a bottle containing a mix of 5 oils supposedly good for clearing sinuses. But as I'm on a Trilogy 24/7, NIV, how best to use them? I had my wife stuff a bit of paper...

This is a survey on computer use (PC, laptop or tablet) by pALS or their full-time caregivers. It’s focus is Microsoft Windows but I need a complete picture, so if you use a different OS, such as iOS or Linux, please select the ‘Other’ Option: Other – No Windows here! The rest of the poll...

Does anyone know of an affordable car power adapter for the Trilogy? I've found the Phillips one, at $289, which must be a markup in the thousands!

On a FB Vets group today, in a discussion about getting a home generator installed, the VA ILP was suggested as an alternative to the SAH or HISA grants. I went looking and found this old discussion and was amazed. But still skeptical...

I have been fighting with my Denver VA for over two years now trying to get a lateral rotation bed. They initially, repeatedly refused the ProBed by Freedom Bed, saying that it is 'dangerous'. This is apparently because there's no clinical tests. So, another Vet got a HillRom Progressa bed...