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    $1 Donation To Als

    Just wanted to share some news with my friends, I visited my local drug store and while checking out, the cashier asked me if I would like to donate $1 towards ALS. Of course, I said, my husband had ALS and I think this is just wonderful that a store is doing this. It seems one of their...
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    Als Assoc. Wins Fight For Power Wheelchairs

    For everyone's information: HR 6331 LEGISLATION PASSED TODAY THROUGH THE US SENATE THAT WOULD EXCLUDE POWER WHEELCHAIRS FROM MEDICARE'S NEW COMPETITIVE BIDDING PROGRAM. THE BILL, WHICH PASSED BY A 69-30 VOTE, ALSO WOULD DELAY IMPLEMENTATION OF THE PROGRAM FOR 18 MONTHS. THIS A TREMENDOUS...
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    Thanks to each on this forum

    Hi Everyone, 8 months ago, I lost my dear husband, friend, companion and thought I would never be able to endure life without my Husband. I find strength, love, and wisdom on this forum. I come here when I feel the emptiness or loss of my loved one and find your strength and love. Somehow...
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    Data Information on ALS

    Hello Everyone, Just thought I would share with you data info, which is available to all PALS. Click on: www.alsa.org *New Scientific American Report on ALS *Possible ALS Drug Granted Orphan Status by the FDA Also, PALS and families of ALS can obtain free tapes, literature from the ALS...
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    Registy/ALSA advocacy website

    Hello everyone, For your information. Please keep your continued outreach for a cure of ALS. Together we can make a difference. Please contact your Senators and express how you feel about a cure for ALS. Help fight against ALS. We must continue to build support among Senators who are not...
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    Support Continues To Build For Als Registry Act

    On December 6, Senator Ted Stevens (r-alaska) Became The 68th Senator To Formally Register His Support For The Als Registry Act! Thanks To The Terrific Outreach Of Advocates In Alaska Who Have Participated In The Association's National Call For A Cure And Veterans Day Letter To The Editor...
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    Fight For A Cure For ALS

    Hello Are we checking with our Senators and Congressmen by clicking on this link? http://capwiz.com/alsa/home When you put in your zip code, it will list all of your representatives. It will also have a form letter that you can send to your senators and congressman. You can add your...
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    Cosponsor S.1382, the ALS Registry Act

    There is a form letter by the ALS Association Mail System that you may send to your senators and congressman. You can send the letter as is or add your personal story to the letter. The ALSA advocacy website: http://capwiz.com/alsa/home/ Lets fight this and find the cure today. Enough...
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    National Registry/ALSA Advocacy Website

    Hello Everyone: I am attaching a link to the ALSA advocacy website. When you put in your zip code, it will list all of your representatives. It will also have a form letter that you can send to your senators and congressman. You can add your personal story to the letter or send it as it is...
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    Memorial Message Read for Husband

    Hi Everyone, Just wanted to share this with everyone. This was read at my husbands memorial service on 11-14-07 before releasing the doves at the graveside. This ALS is the beginning of a journey of many changes, and challenges. This disease is a thief, stealing your ability to walk, to hold...
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