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Little is known about ALS, which was discovered in 1869. In 70 years there's only one questionable drug that may extend life by three years. In 70 years! For unknown reasons, veterans have a 60 perent higher chance of developing ALS. My Wish is to find out what is causing this horrible...

My husband passed away after 2 years diagnosis, also. This journey is very hard on both the patient and caregiver. It robs you of so much. My prayers and hugs are with you today. Hopefully the good memories before this ALS came into your life will sustain you, and give you the strength to go...

Happy Birthday Al! I am also, a June Birthday. Al, could you give me Quadbliss' site address? I have misplaced it. Hope all is well with you now. Hugs, Caroliney;-)

ALS is like a snowflake different with each one. My Husband was diagnosed with ALS after 2 years. In the early stages, when his speech began a slight slur, all doctors said nothing was wrong with his speech. All tests were negative, did not show anything. Gradually, that changed, though...

Hi ALR269, First let me say I am very sorry of your Mother In Law's diagnosed of ALS. This is certainly a challenging disease that affects the total family. The medical staff have difficulty with answers due to the compexity of ALS. They do not know what causes it, therefore, have no idea...

Memories of our loved ones. MSDE302, Thanks for enlightning me on your feelings. I have 4 sons who may share your feelings, and we do need to share our loved ones memories always especially at our Christmas gatherings. Our loved ones would want us to be a complete family thinking of them and...

Trach is not for everyone. Hi All, My experience with the PEG, was great. However, the trach, requires a little more thought and education by trained personnel. Not impossible, but more training, education, and medical needs have to be met. Do your research on the trach and vent. Hugs and...

Good for you! Bethu, You are on the rght tract, I agree our Doctors all including a few at the ALS clinics need more educating on ALS. I had this same problem over and over again with the ALS clinic and seemed to be educating the Doctor about various problems through my research...

You have a great idea! Jimmercat, Run with this idea and creat the awareness of ALS. None of us know what this disease is all about until it hits home, than, we personally become very much aware of this devasting disease. It is a thief to all of us. It robs us of our loved one' life, our...

ALS Journey Hi Jennibf, Actually being a Caretaker and traveled this disease first hand, I would plan my steps before the disease progressed. After educating myself, would take the necessary steps for preparation of my future journey with ALS. This may be the only advantage to this horrible...