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  • Users: daigs
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  1. D

    Vertical Platform Lift

    thank you all
  2. D

    Vertical Platform Lift

    ANYONE KNOW WHERE I CAN GET A USED Vertical Platform Lift
  3. D

    Vertical Platform Lift

    NEED A Vertical Platform Lift ANYONE KNOW WHERE I CAN GET A USED Vertical Platform Lift
  4. D

    Hi

    Hi everyone. I have not been around for a while and I am sorry. I hope everyone is doing great!
  5. D

    Newly Diagnosed

    What drug are you taking?
  6. D

    Newly Diagnosed

    I just started that drug! I am going into week 2. The side effects from the first week were very funny. It was like I was drunk all the time but with no hang over! I would say things without thinking and lets just say some friends and family turned red. Now, I find my muscles are actually...
  7. D

    Advanced Directives

    I'm a lot younger than your dad but I understand where he is coming from. It is very scary for your dad because last thing he wants to think about is leaving you. I have agreed to a feeding tube because I can still eat with it. Trach I'm on the fence. if I'm in a wheelchair and can still...
  8. D

    started research med!

    Hi everyone! Well I took my first does of CK-2017357. So far so good, almost lol. It causes balance issues which is great because I already have that lol. Well I had my solid wood closet doors open and I lost my balance and landed head first into both doors causing them both to fly off the...
  9. D

    I'm new and would like to talk to people who understand.

    Hi Anne I'm so sorry you have to join us here. I am new here as well and have gotten some great support on difficult days. It's great because everyone here understands your thoughts and feelings. I hope you have doctors that really understand the disease. We are here for you!
  10. D

    Cytokinetics ?

    I'm being enrolled now. Just waiting to make sure my blood work comes back ok.
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