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  1. M

    Feeling down today

    I'm glad you found some chocolate to help lift your spirits a little. It is humbling to see that even the strongest of us struggle sometimes. I forget sometimes that those who give the best advice and support can also get slapped around by this terrible disease that connects us. Just remember...
  2. M

    overwhelmed

    Thank you, everyone, for the thoughts and encouragement. My husband's neurologist hasn't written an order for Hospice yet mainly because my husband has refused all efforts for outside help. He won't even let our kids (they are 18 yrs old), help move/reposition him. He has always been so strong...
  3. M

    overwhelmed

    I'm new to this site, so I'm hoping I'm doing this right. I've been at this sole-caregiver thing for quite a while. My husband was diagnosed in 2004 after he lost use of his hands and arms. I became the stay at home caregiver. We live in a very rural area and don't have access to the many forms...
  4. M

    Hi Jackie! I also joined this group to try to find someone close to my age to talk to. My...

    Hi Jackie! I also joined this group to try to find someone close to my age to talk to. My husband was diagnosed in 2004. I am his sole caregiver. We are together 24 hours a day/7 days a week. My children started college this past fall and moved away. I have been on my own ever since. I realize...
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