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  1. C

    My mother / my best friend

    My mother, Anita, died on Sept 8th. She didn't want to fight and struggle any more. I miss her so much sometimes it hurts. She was truly my best friend.
  2. C

    severe pain

    Hi there- My sweet Mom experiences pain that she calls "a ten" in her left arm. This arm no longer works but her hand/fingers do. The pain seems unbearable and doesn't seem to respond to Baclofen or Morphine. We also have lidocaine patches on there and rub Aspercream and massage the muscle...
  3. C

    Familial ALS group?

    My grandfather died of ALS and my mother has ALS and has had genetic testing and found a gene.... I've read that there is a Familial ALS group on this website, but I can't seem to find it. Can anyone point me in the right direction?
  4. C

    what do I say?

    I've posted only a few times on here.... My mom has ALS - the genetic kind (so my fate is also a worry...). But right now, my biggest worry is my mom's emotional state. She attempted suicide in Aug of 2012 when she first started having trouble walking. She attempted suicide again in Feb...
  5. C

    NYC - anyone out there?

    I'm looking for anyone in NYC (specifically Manhattan) who might be interested in talking to me about what they have found helpful in NYC. I am familiar with the ALS foundation, but that seems overwhelming for my mother who is suffering. I am thinking more along the lines of: "I found a...
  6. C

    My mom is suicidal

    My young, otherwise healthy, mom, has "probable ALS". My mother's father died of ALS and she quite simply does not want to die that way. I am her primary caregiver now and she tells me every day that she wants to die. She has a therapist, is on antidepressants and anti anxiety pills, but the...
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