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Oh, and simple oxygen tank helped my mom with nausea. In the end, my mom decided to voluntarily stop eating and drinking to hasten the end of her life - and when that decision was made, we increased Fentanyl and Morphine greatly. I'm so sorry you're struggling to help her with her pain.

My mom really benefitted from Fentanyl patches. She started with a low dose and then we increased bit by bit. Easy to administer as it's a patch, and didn't have a lot of side effects.

My mother, Anita, died on Sept 8th. She didn't want to fight and struggle any more. I miss her so much sometimes it hurts. She was truly my best friend.

Hi there- My sweet Mom experiences pain that she calls "a ten" in her left arm. This arm no longer works but her hand/fingers do. The pain seems unbearable and doesn't seem to respond to Baclofen or Morphine. We also have lidocaine patches on there and rub Aspercream and massage the muscle...

My grandfather died of ALS and my mother has ALS and has had genetic testing and found a gene.... I've read that there is a Familial ALS group on this website, but I can't seem to find it. Can anyone point me in the right direction?

Hi there- This is a really interesting thread to me - my mom has similarly 'given up'. But she is only 66. I'm not sure age matters when it comes to the will to live. My mom has actually attempted suicide 3 times in the past year to just end her suffering.... It's really a horrible place to...

thank you all so much - just being heard has helped me... this will be an ongoing struggle.... not sure what to say - I will reach out again. I wish you all strength and think of you so often. I am so lucky to be healthy for now. My mother is loved and cared for as much as possible. I...

No - she is not religious. But she has a therapist and a psychiatrist and lots of support. She watched her father die of ALS and she has said quite clearly that she just doesn't want to die this way.

Thank you so much for your response, Vicki. She is on antidepressants and anti anxiety meds - but her psychiatrist has actually said he doesn't believe she has depression - she has situational fear and sadness. But she stays on the meds just in case they're helping at all.

I've posted only a few times on here.... My mom has ALS - the genetic kind (so my fate is also a worry...). But right now, my biggest worry is my mom's emotional state. She attempted suicide in Aug of 2012 when she first started having trouble walking. She attempted suicide again in Feb...