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  1. J

    Thanks again Barbie. I appreciate you responding. Penny can barely speak now. Its getting...

    Thanks again Barbie. I appreciate you responding. Penny can barely speak now. Its getting really hard. Yes I am on anti-depresants but Im not sure they help. Its really weird, I often think about when its over what will it be like. Will I be so sad and full fo guilt? Will I be pissed at...
  2. J

    Barbie, I remember reading your posts a while back and you were very inspirational, and I cant...

    Barbie, I remember reading your posts a while back and you were very inspirational, and I cant believe you are still going at it. I don't know if you remember but my wife penny has ALS. I have been struggling with this for the past 3.5 years. I am feeling like someone should help. I feel...
  3. J

    Feeling down today

    Barbie you ARE a rock. I read a lot of your posts and I am so sorry to see you as down as you are. I have many of those same feelings. I look to you for inspiration so have that drink and get back on your feet. We all need you! (as if you'er not giving enough already!)
  4. J

    Guilty feelings

    Penny talks to a social worker from hospice, I have not yet but I am going to set something up next week.
  5. J

    Guilty feelings

    So today I tried to get some time for myself. I have done woodworking as a hobby for most of my life. Penny has helped me do art festivals for the past 15 years.... I do clocks, wall mantels and wine racks. Last summer was the first time I have ever done a show alone, Penny was unable due to...
  6. J

    Guilty feelings

    This forum (although I'm not sure how it all works) is wonderful. I have poked around (just wondering) looking at people who share the same life I am living. WOW, I am. not alone. I had another night of guilt last night, not good for Penny, she got up 3 times and I had that same old horrible...
  7. J

    Guilty feelings

    Thank u all for the support. I have heard that a lot that I need to get out. I do every now and then to run to the store. Or something. It actually feels like I am in high school, it feels like the world has been lifted off my shoulders. But I find myself calling Penny and asking if she's...
  8. J

    Guilty feelings

    Sorry, I just posted this in another section which may have been incorrect.... Hi I am new to the forum. My wif (Penny) was diagnosed about 10 months ago. She is 54 years old and is confined to a powered wheelchair. She has no leg mobility and arms are 80% gone. I work until 5pm. Her mother...
  9. J

    My husband was just diagnosed

    Hi I am new to the forum. My wif (Penny) was diagnosed about 10 months ago. She is 54 years old and is confined to a powered wheelchair. She has no leg mobility and arms are 80% gone. I work until 5pm. Her mother comes 3 days a week, her sister comes one day a week and my company allows me...
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