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Dear ALS Forum members, I just wanted to let you guys know how much I have enjoyed spending time together at ALS Forums. Getting to know each of you has been one of the best parts of my life. Even though we only met since this January over the Internet (when I became a member of this great...

I'm the same boat "Old Dog". Don't go out very often either. Too much hassle to get ready as well.

My deepest sympathies for your loss. I wish you peace and strength.

Your Dad hasn't been diagnosed with ALS/MND by a reputable Neurologist. Therefore, all you'd be doing is making assumptions which could turn out to be incorrect. Why don't you try to make follow up appointments with the Physicians that are already seeing him and wait for tests to rule out...

Did you watch the NEALS Webinar w/ALSUntangled and their conclusions about Propofol. That was to be expected coming from them. I wasn't surprised at all.

The ALSUntangled presentation was a mockery. X-Files? Mulder? Samantha? Comparing ALS patients' hopes to believing in UFO's? Why there was a picture of a UFO on the slide? PALS and CALS are not into make-believe and science fiction. We realize a treatment might not work, might be limited, or...

Tina, LALS/MND never presents itself as body wide muscle twitching. It usually starts with weakness distally (a hand, a foot). You would notice weakness when you can't accomplish daily activities that were easy to do before such as lifting a gallon of milk, opening a jar, walking without...

In regards to your Dad rejecting Tracheostomy, I think that is a personal decision by him. Tracheostomy (also known as Vent) puts a lot of burden to caregivers and the ALS patient alike. If I were you, I would discuss the pros and the cons of a Tracheostomy at the ALS Clinic where he attends...

Jennifer, My apologies for not getting back to you sooner. I am sorry to hear that, apparently your Dad ALS is progressing rather quickly. What you mention about throat spasms are actually Laryngospasms and they can happen even to healthy people. I don't think they are related to Bulbar...

@Kim, There have been PALS where ALS started as Limb-onset and they never lost their voice even at the very end of the disease. Do you remember the late Forum Moderator Al Pettit? He was ALS Limb-onset and never lost his voice. There is a PALS 65 years old who attends to the our PALS/CALS...