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I'm an ALS worrier like you DaveSmith - Since last fall, I've had body-wide muscle twitching, upper back pain, loud clunking/clicking noises in my ears when I swallow, constant phlegm in my throat, tinnitus, joint pain, and heavy/wobbly legs... yet no demonstrable weakness and only a BFS...

You and me both :wink: I've been having perceived swallowing issues since last November along with clicking in my throat , muscle twitching, tinnitus, back pain etc. Nothing horrible has happened to me yet. If you think it might make you feel any better, set up an appointment w/ a...

I'm no expert, but fasciculations without active denervation is almost always benign.

Hey Nicki, I can't remember, but I remember reading from somewhere that 15% of ALS onset do not start w/ classic limb weakness or tongue weakness, but either something like 7% fasiculations, and the rest is diaphragm, paraspinal muscles, trouble clearing throat and that sort of thing. The...

There really shouldn't be a "Do I have ALS section" because 98% of individuals posting don't have ALS, but without it, people will be flooding the other forums on this site asking if they have ALS. If you don't have at least one of the cardinal initial symptoms of ALS which accounts for about...

:roll: :roll: :roll: :roll: :roll: :roll: :roll:

It is frustrating that there's no universally accepted EMG test that accesses the strength of all major muscles groups: thighs, calves, hands, arms, paraspinals, facial, and tongue. I'm not sure why some neurologists just simply refuse to test the area you have weakness in (for me, bulbar and...

I simply wanted to add that I have almost all the same symptoms you have (except add neck pain, upper back pain, body-wide fascis, and terrible tinnitus), so according to HangingOn, I have advanced ALS just like you - except I've been laughed out of the office by two separate neurologists. I'm...

Not sure what hanging on is talking about, but you have no slurring, and no air is escaping from your nose when you breathe out the mouth. A lot of people can't roll the r's because English doesn't require us to, so that part of the tongue is untrained. Slurring or hypernasality in speech is...

Any difficulties swallowing with a straw? Do you have difficulty blowing up your cheeks? Difficulty whistling? Can you roll the Rs, or make sort of a Chewbacca sound? Does air escape your nose when blowing through your mouth (as if blowing up a balloon)? Can you gargle (like w/ mouthwash)...