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It has been over 2 months since I last visited the forum and I see that we have lost so many more of our dear warriors. I was having some difficulty with the losses, and then my own body gave out on me. I have been Tim's sole care giver since he was diagnosed in 2012, but have been blessed...

I am at my wits end and it has nothing to do with this disease. After the scare we had with Tim's gallbladder and his increasing difficulty speaking and swallowing I decided I would arrange for all of his kids, and mine to come for Christmas. I contacted them all and told them that we would...

Monday evening Tim started complaining of abdominal pain. This would be the forth time with the same symptoms, and I had managed them myself the last 3 times. This time even after having 2 BM's he continued to have pain and nausea. I had aspirated everything out of his stomach via his feeding...

So Tim had his feeding tube put in 2 years ago as his breathing was deteriorating quickly in spite of the fact that he was still mobile. He had it changed to a low profile Mic Key which was great and just needed to be flushed with water to keep it open. On the odd time that I forgot to give...

So, I am positive that Murphy live at our house, because if anything strange can happen it will. Lets start at last Saturday, Timothy's son's wedding day in Texas. Obviously Tim was unable to attend in person as we live 2000 miles away, but we did attend by Skype. This is very fitting as that...

I have been fairly quiet on the forum lately, as I have been keeping myself very busy, so I don't have to think. We have our routine down, to the point that I can just about do it in my sleep, and our life has been feeling so "normal." Tim has just about all the equipment that you can get, and...

My husband is now at the stage where he is having difficulty swallowing his saliva unless he is in a complete upright position. This is not a problem during the day, while he is up in his pwc, but is when he is in bed. His bed turns him automatically on a programmed schedule, but does have a...

Over the last few months I have noticed that my husband's urine swings from very clear to being tea coloured in one day. I also have wondered if he was jaundiced as his skin has a yellowish hue when I massage the edema from his hands or feet. I spoke with a friend who is also a nurse, about it...

A few have noticed that I haven't been on the forum lately, and that is because there has been a new addition to our family. 1 ½ years ago our dog Kona had to be put down, and I felt that there was no way we could have another one given Tim's ALS. One month ago a neighbour brought over a...

Was giving Tim a shower today, and had him tilted quite far back in his shower chair. I had done everything and was just finishing his shave, when I pushed the chair over a couple of inches to get into a better position. Well the floor of the shower is dipped to the drain and the left bak...