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  • Users: Just A Guy
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  1. J

    What does it look like when the FVC / FEC drop to 50%?

    I read that one should consider using a ventilator when the FVC / FEC drop to 50% or lower. But what does it look like. How does the patient breathe when the FVC / FEC are this low. I'm asking because my dad has stopped going to the neurologist and doing all these tests. He says there's nothing...
  2. J

    To those with ALS, what do you think was the cause?

    I don't know why, but developed nations have higher rates of neurological diseases. The same goes for cancer. Do you think that the chemicals (pesticides, hormones, antibiotics) that are used to produce our food are affecting our health (no doubt they are). Now in Europe, there is a slightly...
  3. J

    Is it possible to pass away at night while using a CPAP / BiPAP?

    I'm just wondering because my dad does not want to vent. During the day, someone will be with him, but at night is it possible that he could pass away without anyone ever knowing?
  4. J

    Question about ALS progression? How much time?

    Hi there my dad was diagnosed with ALS, diagnosed about 2 yrs ago. Recently he had to get a PEG tube. In addition, he walks on a cane now. I'm just wondering how much time he has left? I'm thinking that he is doing pretty good because he is not in a wheelchair yet. But how much longer does he...
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