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  1. J

    What does it look like when the FVC / FEC drop to 50%?

    I read that one should consider using a ventilator when the FVC / FEC drop to 50% or lower. But what does it look like. How does the patient breathe when the FVC / FEC are this low. I'm asking because my dad has stopped going to the neurologist and doing all these tests. He says there's nothing...
  2. J

    To those with ALS, what do you think was the cause?

    You are right. There are a few identified reasons for ALS, such as excess Glutamate in the brain. But the actual cause for this is unknown. Hope the best for you, thanks for contributing you ideas.
  3. J

    To those with ALS, what do you think was the cause?

    They are generally nice people. But you know many people on here are going through a lot. So if they get angry once in a while, I'm alright with it. But in general, thanks so much for helping out so much on this and my other threads. By the way, in relation to this thread, I read that many ALS...
  4. J

    Question about ALS progression? How much time?

    Thanks for the info. How does medicare work exactly? Is everyone eligible for it that has a disability?
  5. J

    Question about ALS progression? How much time?

    Thanks for replying. Is there a way I can send you a message?
  6. J

    Is it possible to pass away at night while using a CPAP / BiPAP?

    Thanks for replying. If you cannot communicate while you are on the Phillips, then my Dad will not agree to it. I hope you don't mind me asking you. What should I do here? What would be the right thing?
  7. J

    Is it possible to pass away at night while using a CPAP / BiPAP?

    From what I read, the DPS seems like it would allow the patient to breathe without any sort invasion through the trachea. Does this mean the patient will be able to move around and speak and such.
  8. J

    Is it possible to pass away at night while using a CPAP / BiPAP?

    Thanks for letting me know. Can you tell me a little bit about the Trilogy machine if you don't mind. What kind of things can your wife still do. Can she speak? Is she mobile? What about eating? I assume it has to be through a peg. In other words, is the Trilogy machine like a face mask that...
  9. J

    To those with ALS, what do you think was the cause?

    It's true that the demographic is different in developed countries. But ALS has no such links to it. Something like breast cancer / testicular cancer are found in higher rates among caucasian males / females. However studies found that asians and other ethnic groups that immigrated to America...
  10. J

    Is it possible to pass away at night while using a CPAP / BiPAP?

    Thanks for the replies guys. I'll do some research on them
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