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I have had als for 6 years and vented for almost 3 years. I made this for several reasons : physically (i a basically paralyzed from head to toe), quality of life, financial, insufficient nursing, burden on my family, ready to meet my maker and make me whole again. I am at peace with the...

I have no where to express how I am feeling, this place is the only place I could think of. Because I am totally paralyzed and on a vent we qualified for the medicaid tech waiver, which allows us 16 hours per day of nursing. We live in rural VA so it is difficult to find nurses. We had one...

The MDA and ALS association should be ashamed of themselves along with MLB for not partnering up to advocate for this disease this disease is more known as Lou Gehrig disease, one of the greatest players in baseball. So MLB on mother's day can make this grandiose statement for breast cancer...

A little a bit of my story about living with ALS, my two cents to help bring awareness Times-Mirror Special Report: Living with ALS | LoudounTimes.com

It has been one year and three months since my diagnosis and 2 1/2 years since my first symptom. Going through the diagnosis process and being told I have ALS, I was kind of prepping myself for it so it really wasn't a shock for me, also at the time the weakness was only my right arm. So looking...

Got here yesterday, spent the day with wife and two kids at Mall of America, that place is huge! I will be admitted to the hospital tomorrow with the stem cell proocedure ocurring Tuesday morning, will get discharged on Thursday, will let everyone know how it goes....

Well my right arm is to the point where I can't raise it much above my waist and really hard to straighten most fingers. I can still walk unassisted, no bulbar issues and my left arm is weaker but still functional. When I go to church or meet people at work (those who don''t know I have als)...

Well I just got the word, I go for my screening visit week of Sept 9th. Only taking 25 participants, and with me living in VA, guess lucky I got this far.... First symptom coming up on 2 years, and diagnosis was in Jan so my timeframe is shrinking in terms of getting into trials... I...

After getting my diagnosis in Jan of this year, started planning bucket items. Tops was a trip to the Antarctic, no one wanted to go with me, so I settled on a cruise to Alaska, we are leaving this Saturday (10 days also spending some time in Vancouver). Now the problem, my brother in-law...

I have noticed recently when I get in a stressful situation, like I just had at work where some of my software developers were screwing up, it has a profound short term effect on me. My fasciculations really ramp up across whole body. In addition my right leg which is slightly affected at this...