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My mother in law is now presenting issues with her tongue...this is moving so quickly it's unbelievable...but who knows how long shes truly had this disease....she experienced something this morning that frightened my daughter...we go to visit every two weeks...anyways...for about an...

Well as expected things have declined somewhat in all areas. Some new issues with her tongue and side to side movement of it. Is there more than one lung test? If not the forced one was at around 50%...they stayed at our place last night. And I think we all realized this may be the last visit...

She as an appointment tomorrow actually. We as a family are working through it.

I first posted on here in December. My mother in law was diagnosed at the end of 2012 with ALS. Since November where she was able to go hunting and hiking she now has a walker for inside and out...bipap for sleeping and has a difficult time walking short distances. She needs help dressing and...

Why our thread we started was locked? I don't get it?

I remember the saying “what a difference a day makes.”* I probably said it a few times as it pertained to my life but never has it been so life changing.* Today I am not reflecting on a difference that a day makes but what a difference two months makes. In December of 2012 at the age of 66, my...

So we told the kids. It was tough. With help from this forum and suggestions from als .ca. My father in law has gutted the on suite bathroom jacuzzi tub and replaced it with a large handicap shower that has a chair in it. We have signed up for als walk here in Barrie and hope to raise money...

Don't want to scare the kids..we understand it is rare. We need to explain things to them so they can understand the changes that are going to be visible. They are highly intelligent children that already know grandmas hands don't work so well

Well my wife spoke to my father in law briefly. Confirmation of ALS today. I am lost as is my wife. We will speak to them tomorrow. I truly hoped that original diagnosis was an error.

My mother in law finally goes tomorrow. Her apt last week got switched. This has been a long few weeks.