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Hey Kim thanks for the prayers. I am doing well got afo braces to help me walk a little better also got a handy cap sign so i can park a little closer to stores now:) never thought i would need one of those at 27 but eh oh well. hope things are going good for you. thinking of ya

good deal. you are correct, the first week you are on the real drug and i did experience a little dizziness but nothing crazy. they said that the side affects would subside after first 4-6 days. maybe its just me and my luck but i think im on the placebo. we shall see. good luck to you

thank you all again

wow. so sorry to hear this. could not imagine what parents are going through. thoughts are with you

I am 27 years old and have A L S and was wondering if there was anyone on this forum in the same boat as me. or if you know of someone who is 20 something and has this thanks greg

Well I am 27 yrs old and have been told that there is a good chance I might be the only person in their 20's with A L S in the US not sure how true this is but if it is true i guess i am part of an elite group:)

things are going good Kim. i did get in a trial and hopefully it helps. now you be sure to hang in there as well. we need more ppl like you:)

I did. I have been in the trial for two weeks now. we shall see if it helps or not :) hope you get things going quickly!!

I believe it is enrolling people now. I start this week

i am going to give DP a shot jpsteeler keep me posted on how its effecting you (hope ur not a steelers fan:) hamdog i have not really noticed an issue with my breathing except maybe a little bit when i lay down at night. but other than that it feels pretty normal