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  • Users: teee
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  1. T

    sucking through straw/ smoking

    When my mother could no longer drink from a straw I bought her sippy cups. She liked them and they worked great.
  2. T

    My Mom has ALS and it seems to be progressing quickly

    It is hard for any of us to give you the advice you are looking for. Not everyone can stand to see there loved one every day or even once or twice a week battling this horrible disease. I was with my mother till the end, yes there were days where I would just stand outside her front door and cry...
  3. T

    Friend with ALS

    My mother passed away after 15 months of diagnosis and there will be many days when it is hard to keep positive thoughts. I am 44 yo male and every day I tried to visit her, some days I would sit in the driveway and cry in my car before I would go inside just so I could appear to her that I was...
  4. T

    Losing ability to suck through a straw

    Hi my mother had the same issue she would always drink ice tea or ensure with a straw but it got to a point where she could no longer do it. So I went out and got her sippy cups that children use. The tea came out of the cup good but i needed to make the holes in the cup bigger for her to be...
  5. T

    Any advice on getting into a car?

    My Mother past away from ALS on January 10th. She last left her house to go to church with me around September. I used a garbage bag a few times and this made it very easy for the both of us. Just place the bag on the seat let her sit down on it with her feet either still on the ground or one...
  6. T

    Caregiver options

    Hospice can help medicare will pick up the charges. also contact the department of aging they can help as well, here in Pennsylvania we filed a PDFA waiver I believe thats what it was called. They will come in and do a health and financial evaluation and if she meets the needs the state will...
  7. T

    Mom with ALS just placed in Hospice

    Sorry to hear about your mother. I lost mine on the 10th. Hang in there brother.
  8. T

    My mothers passed this morning

    Thanks everyone for the kind words. It has been a long 4 days your words of encouragement have been very helpful.
  9. T

    My mothers passed this morning

    Hello I just wanted to let all of you know that after her 2 year battle of this horrible disease her time has come this morning at 1:30. I was there with her as she took her last breathes. It was a terrible thing to see. Her breathing was very fast and her tempeture was very high. Then with no...
  10. T

    Mother 66 years old is very bad

    Thank you Helen I was there today with my brother and step father. She is still at her home. She is not to responsive she is able to squeeze my hand when I tell her I love her. It is a struggle but I will get through it. She hasn't ate anything for days only only will drink fluid. She is...
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